Westminster

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The APPG Report: Rethinking ME

The All-Party Parliamentary Group (APPG) on Myalgic Encephalomyelitis (ME) released the “Rethinking ME” report to address the challenges faced by individuals with ME/CFS. Key highlights include: Research Investment: The report emphasizes the need for increased funding to explore the biological mechanisms of ME/CFS. It advocates for prioritizing research to improve diagnosis, treatment, and understanding of…

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Chronic Fatigue Syndrome and Coronavirus

Chronic Fatigue Syndrome (CFS), also referred to as Myalgic Encephalomyelitis (ME), and coronavirus have been linked through emerging research, particularly in the context of Long Covid. Here are the highlights: Overlap in Symptoms: Both conditions share debilitating symptoms, such as persistent fatigue, cognitive dysfunction (“brain fog”), and post-exertional malaise. This similarity has driven research into…

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Chronic Fatigue Syndrome: Medical Treatments

Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), has no definitive cure, but various treatments aim to alleviate symptoms and improve quality of life. Key approaches include: Medication: Pain relievers, antidepressants, and sleep aids may be prescribed to manage specific symptoms. Over-the-counter options like antihistamines can help with sleep disorders, while prescription medications…

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House of Lords: Education Answers

The House of Lords provides written answers to questions related to education, offering insights into government policies and initiatives. Key highlights include: Funding Announcements: Recent statements have detailed significant investments in education, including over £1 billion for mainstream school places by 2028 Additional funding has been allocated for Special Educational Needs and Disabilities (SEND) and…

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Chronic Fatigue Syndrome and Coronavirus: Answers

The relationship between Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), and coronavirus has been a topic of parliamentary discussions and research. Key points include: Vaccination Eligibility: Individuals with ME/CFS are not automatically eligible for the COVID-19 spring booster unless they meet additional criteria, such as being immunosuppressed Distinct Conditions: While ME/CFS and…

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Chronic Fatigue Syndrome in Children and Young People

Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), can significantly impact children and young people. Key aspects include: Symptoms and Diagnosis: Symptoms include persistent fatigue, post-exertional malaise, unrefreshing sleep, and cognitive difficulties. Diagnosis often involves ruling out other conditions and assessing the impact of symptoms on daily life. Management Strategies: Individualized care plans…

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Chronic Fatigue Syndrome: Coding by GPs

The coding of Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), by General Practitioners (GPs) is essential for accurate diagnosis, treatment, and healthcare planning. Key points include: SNOMED CT Classification: The SNOMED CT system includes a specific code for CFS/ME, ensuring standardized recording in medical records This coding helps healthcare providers track prevalence…

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Chronic Fatigue Syndrome: Health Services (March 2022)

Healthcare services for Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME), aim to provide comprehensive support for patients. Key aspects include: Specialized Clinics: Dedicated clinics offer tailored care, including symptom management, pacing strategies, and psychological support. Multidisciplinary teams work to address the complex needs of ME/CFS patients. Challenges in Access: Patients often face…