In 2018, Members of Parliament (MPs) rallied to secure a vital parliamentary debate on Myalgic Encephalomyelitis (ME), aiming to address the challenges faced by ME/CFS patients. Below are the key highlights: Cross-Party Support: The debate garnered strong cross-party backing, reflecting the widespread concern for ME/CFS patients. MPs emphasized the need for increased awareness and better…
In 2018, Parliamentary discussions addressed concerns regarding the use of Cognitive Behavioral Therapy (CBT) and Graded Exercise Therapy (GET) as treatments for ME/CFS. Below are the key points: Adverse Effects Reporting: Questions were raised about how patients could report adverse effects from non-pharmacological treatments like CBT and GET. The Yellow Card Scheme, typically used for…
The Home Care Briefing of August 2015 highlights the importance of providing sensitive and effective care for individuals with severe ME. Below are the key points: Awareness and Sensitivity: Home care for severe ME patients requires a deep understanding of their unique needs. Caregivers must approach their roles with empathy and adaptability. Challenges and Rewards:…
The All-Party Parliamentary Group (APPG) on ME continued its advocacy efforts in 2014, addressing vital concerns for ME/CFS patients, including healthcare provisions, welfare reform, and scientific research. Below is a summary of key points from the meeting: Welfare Reform: Updates were shared on Personal Independence Payment (PIP) assessments and their ongoing impact on ME/CFS patients….
The All-Party Parliamentary Group (APPG) on ME continued its work in 2013, focusing on welfare reforms, NHS services, and ongoing research for ME/CFS patients. Below are the main highlights: Welfare Reform: Concerns remained about the impact of Personal Independence Payment (PIP) assessments on ME/CFS patients. The effectiveness of the Work Capability Assessment (WCA) was again…
The All-Party Parliamentary Group (APPG) on ME convened in 2012 to address ongoing challenges facing ME/CFS patients, including welfare reforms, NHS services, and research advancements. Here’s an overview of the key discussions: Welfare Reform: Updates highlighted the continued rollout of Personal Independence Payment (PIP) replacing Disability Living Allowance (DLA). Concerns persisted around the Work Capability…
The All-Party Parliamentary Group (APPG) on ME convened on October 25, 2011, to discuss key issues affecting ME/CFS patients, including welfare reforms, research updates, and NHS services. Below is a summary of the main points: Welfare Reform: Updates on the Welfare Reform Bill included changes to benefits, such as the introduction of Universal Credit and…
The All-Party Parliamentary Group (APPG) on ME held several key meetings in 2009, addressing critical issues related to ME/CFS patients, NHS services, and welfare reforms. Below is a summary of the main discussions: July 8, 2009 Meeting: Chaired by Dr. Des Turner MP, with the Countess of Mar and other MPs in attendance. Focused on…
The All-Party Parliamentary Group (APPG) meeting on ME, held on October 8, 2008, focused on significant issues surrounding welfare reforms, child protection, NHS service provisions, and advocacy for patients with ME/CFS. Here’s a concise overview of the key discussions: Welfare Reform Presentation: Rt Hon James Purnell MP presented the Welfare Reform Green Paper, highlighting changes…
This document provides summaries of two meetings conducted by the All-Party Parliamentary Group (APPG) on ME/CFS in 2007. It highlights key discussions, presentations, and outcomes related to ME/CFS services and policy in the UK. Meeting Held on 22nd February 2007: Attended by representatives from ME/CFS charities, individuals, and MPs, alongside guest speakers from NICE. The…