This summary outlines key developments from UK parliamentary written questions and answers regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in September 2025. Research Funding and Strategy The National Institute for Health and Care Research (NIHR) allocated £3.7 million to ME/CFS research between 2019/20 and 2023/24. The Medical Research Council (MRC) contributed £2.9 million in the same…
This summary presents key developments from UK parliamentary discussions in July 2025 concerning Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), including the publication of the Government’s final delivery plan. 📢 Final Delivery Plan Published On 22 July 2025, the UK Government released its final delivery plan for ME/CFS. The plan aims to: Boost biomedical research Improve public…
Delivery Plan for ME/CFS The Department of Health and Social Care is preparing a national ME/CFS Delivery Plan. Focus areas include: Advancing research Improving education and professional attitudes Enhancing quality of life for patients across England 📚 NICE Guidelines and NHS Implementation Integrated Care Boards (ICBs) are responsible for commissioning ME/CFS services. NHS England is…
A series of parliamentary written answers from May 2025 address the UK Government’s approach to Myalgic Encephalomyelitis (ME/CFS) and related issues, including social security benefits, personal independence payment (PIP), healthcare services, employment, and discrimination protections. Key points include: The Government’s Pathways to Work Green Paper outlines reforms to health and disability benefits, aiming to reduce…
This document provides a detailed overview of recent discussions and updates from the UK Parliament regarding long COVID, myalgic encephalomyelitis (ME), also known as chronic fatigue syndrome (CFS), and related healthcare services and research initiatives. Key points include: Long COVID Clinics: Integrated Care Boards (ICBs) are responsible for service commissioning. An NHS England stocktake revealed…
Recent discussions in the UK Parliament have focused on improving the care and support for individuals affected by myalgic encephalomyelitis, also known as chronic fatigue syndrome (ME/CFS). Key areas of action include: Delivery Plan Development: The government is finalizing a comprehensive ME/CFS delivery plan aimed at boosting research, improving healthcare services, and enhancing education and…
The UK Government discussed developments in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and long COVID care during February 2025. Key highlights include: Delivery Plan for ME/CFS: The final delivery plan aims to focus on boosting research, improving education, and bettering the lives of those affected. It is set to be published by March 2025, informed by…
January 2025 saw crucial discussions in the UK Parliament focusing on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and post-COVID-19 services. Key updates include: ME/CFS Services Stocktake: NHS England conducted a comprehensive review of ME/CFS and post-COVID-19 services to evaluate current challenges, develop strategic recommendations, and enhance service delivery. Healthcare Training Improvements: The Department of Health and…
The NICE guidelines outline the diagnosis and management of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), emphasizing the need for medically led care, accurate and timely diagnosis, and ongoing support. Key points include: Nature of ME/CFS: A complex, chronic medical condition affecting multiple body systems, with quality of life often significantly lower than in other severe chronic…
In July and August 2024, updates on Myalgic Encephalomyelitis (ME), also known as Chronic Fatigue Syndrome (CFS), focused on government initiatives and research advancements. Key highlights include: Consultation Progress: The Department of Health and Social Care continued analyzing feedback from the consultation on the interim delivery plan titled “My Full Reality.” Stakeholder input emphasized the…