On Tuesday 28 July, WAMES met with the Cabinet Minister for Health and Care, Mabon ap Gwynfor MS, alongside representatives from Action for ME, SMEDC and Long Covid Support. Go to, https://www.wames.org.uk/meeting-with-health-minister-me-lc-services-in-wales/
Key Points Noted by the Senedd ME is recognised as a chronic, disabling illness affecting individuals at all severity levels. [WELSH ASSE…ember 2025 | PDF] 25% of people with ME are severely or very severely affected, meaning they are largely or fully bedbound, often requiring full‑time care, palliative management, or tube feeding. [WELSH ASSE…ember 2025…
On 24 April 2025, the Senedd (Welsh Parliament) tabled Motion NNDM8884 to address the urgent needs of people living with Myalgic Encephalomyelitis (ME), a chronic and disabling illness. Key points from the motion include: Recognition of ME Severity: ME affects individuals at varying levels, with 25% classified by NICE as either severely or very severely…
Summary: The document outlines the UK Government’s efforts to investigate genetic risk factors associated with Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME). Key points include: DecodeME Study: A £3.2 million research initiative funded by the National Institute for Health and Care Research and the Medical Research Council. This study aims to analyze…
Summary: The report highlights advocacy efforts and community engagement for ME (Myalgic Encephalomyelitis) in Wales during 2012. Key points include: Political Advocacy: Julie Morgan, Assembly Member for North Cardiff, attended a support group meeting in November 2012. She listened to patients’ concerns about the lack of services, understanding, and challenges in accessing benefits. She invited…