Welsh Assembly

Summary: The document outlines the UK Government’s efforts to investigate genetic risk factors associated with Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME). Key points include: DecodeME Study: A £3.2 million research initiative funded by the National Institute for Health and Care Research and the Medical Research Council. This study aims to analyze…

Summary: The report highlights advocacy efforts and community engagement for ME (Myalgic Encephalomyelitis) in Wales during 2012. Key points include: Political Advocacy: Julie Morgan, Assembly Member for North Cardiff, attended a support group meeting in November 2012. She listened to patients’ concerns about the lack of services, understanding, and challenges in accessing benefits. She invited…