Key Points Noted by the Senedd ME is recognised as a chronic, disabling illness affecting individuals at all severity levels. [WELSH ASSE…ember 2025 | PDF] 25% of people with ME are severely or very severely affected, meaning they are largely or fully bedbound, often requiring full‑time care, palliative management, or tube feeding. [WELSH ASSE…ember 2025…
On 24 April 2025, the Senedd (Welsh Parliament) tabled Motion NNDM8884 to address the urgent needs of people living with Myalgic Encephalomyelitis (ME), a chronic and disabling illness. Key points from the motion include: Recognition of ME Severity: ME affects individuals at varying levels, with 25% classified by NICE as either severely or very severely…
Summary: The document outlines the UK Government’s efforts to investigate genetic risk factors associated with Chronic Fatigue Syndrome (CFS), also known as Myalgic Encephalomyelitis (ME). Key points include: DecodeME Study: A £3.2 million research initiative funded by the National Institute for Health and Care Research and the Medical Research Council. This study aims to analyze…
Summary: The report highlights advocacy efforts and community engagement for ME (Myalgic Encephalomyelitis) in Wales during 2012. Key points include: Political Advocacy: Julie Morgan, Assembly Member for North Cardiff, attended a support group meeting in November 2012. She listened to patients’ concerns about the lack of services, understanding, and challenges in accessing benefits. She invited…