A statement in the Northern Ireland Assembly marked the beginning of ME Awareness Week, drawing attention to the challenges faced by those living with myalgic encephalomyelitis (ME). Robbie Butler MLA emphasized the severe impact of ME, describing it as a complex neurological condition that leaves many housebound or bedridden. He noted the lack of specialist…
ME (Myalgic Encephalomyelitis), also known as chronic fatigue syndrome, is a debilitating neurological illness that impacts over 7,000 people in Northern Ireland. Many patients suffer without a diagnosis or treatment plan, feeling stigmatized and unsupported. ME Support NI, a charity founded by Antoinette and David from west Belfast, offers invaluable aid to ME patients, providing…
Summary: The report sheds light on the struggles faced by over 7,000 ME patients in Northern Ireland as of December 2012. Key points include: Healthcare Services: NHS services for ME patients were described as poor and worsening. Specialist care was limited, with key personnel retiring or leaving the field, and remaining consultants focusing on diagnosis…