Key Points Noted by the Senedd ME is recognised as a chronic, disabling illness affecting individuals at all severity levels. [WELSH ASSE…ember 2025 | PDF] 25% of people with ME are severely or very severely affected, meaning they are largely or fully bedbound, often requiring full‑time care, palliative management, or tube feeding. [WELSH ASSE…ember 2025…
1. Specialist ME/CFS Services and Local Provision MPs asked about the adequacy of ME/CFS services in Surrey Heath and Ashfield. The Government confirmed the ME/CFS Final Delivery Plan (July 2025) guides improvements in research, attitudes, and care. NHS England is developing resources to strengthen services for mild and moderate ME/CFS and exploring the creation of…
1. Training and Awareness for Healthcare Professionals The Department of Health and Social Care confirmed that: A final ME/CFS Delivery Plan was published in July 2025. Three NHS e‑learning modules on ME/CFS are now available to improve diagnosis and management. The Medical Schools Council and GMC will ensure ME/CFS is included in medical training and…
This summary outlines key developments from UK parliamentary written questions and answers regarding Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) in September 2025. Research Funding and Strategy The National Institute for Health and Care Research (NIHR) allocated £3.7 million to ME/CFS research between 2019/20 and 2023/24. The Medical Research Council (MRC) contributed £2.9 million in the same…
This summary presents key developments from UK parliamentary discussions in July 2025 concerning Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), including the publication of the Government’s final delivery plan. 📢 Final Delivery Plan Published On 22 July 2025, the UK Government released its final delivery plan for ME/CFS. The plan aims to: Boost biomedical research Improve public…
Delivery Plan for ME/CFS The Department of Health and Social Care is preparing a national ME/CFS Delivery Plan. Focus areas include: Advancing research Improving education and professional attitudes Enhancing quality of life for patients across England 📚 NICE Guidelines and NHS Implementation Integrated Care Boards (ICBs) are responsible for commissioning ME/CFS services. NHS England is…
On 24 April 2025, the Senedd (Welsh Parliament) tabled Motion NNDM8884 to address the urgent needs of people living with Myalgic Encephalomyelitis (ME), a chronic and disabling illness. Key points from the motion include: Recognition of ME Severity: ME affects individuals at varying levels, with 25% classified by NICE as either severely or very severely…
A statement in the Northern Ireland Assembly marked the beginning of ME Awareness Week, drawing attention to the challenges faced by those living with myalgic encephalomyelitis (ME). Robbie Butler MLA emphasized the severe impact of ME, describing it as a complex neurological condition that leaves many housebound or bedridden. He noted the lack of specialist…
A series of parliamentary written answers from May 2025 address the UK Government’s approach to Myalgic Encephalomyelitis (ME/CFS) and related issues, including social security benefits, personal independence payment (PIP), healthcare services, employment, and discrimination protections. Key points include: The Government’s Pathways to Work Green Paper outlines reforms to health and disability benefits, aiming to reduce…
This document marks International ME Awareness Day 2025, celebrated annually on May 12th. It highlights the efforts and impact of ME Research UK, a Perth-based charity dedicated to funding and commissioning biomedical research on myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS). Key points include: ME Research UK Achievements: Over 25 years, the charity has invested over…