Purpose To provide expert insights from Faye Vogiatzoglou, focusing on specialized healthcare needs and management strategies for individuals with ME/CFS. Key Points Experience in ME/CFS Care Vogiatzoglou emphasizes the importance of a multidisciplinary approach to managing ME/CFS, addressing both physical and emotional aspects of care. Patient-Centered Care Strategies include personalized healthcare plans, adapting treatments to…
Purpose To provide expert insights from Caroline Kingdon, a researcher specializing in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), focusing on advancements in research and patient management. Key Points Research Contributions Caroline Kingdon has been involved in studies identifying biomarkers and exploring immune system dysfunction in ME/CFS. Her work emphasizes the importance of multidisciplinary research to better…
Purpose To provide expert advice from Dr. Nina Muirhead, a specialist in ME/CFS, addressing common concerns and offering insights into managing the condition effectively. Key Points Understanding ME/CFS ME/CFS is a complex condition characterized by persistent fatigue, post-exertional malaise (PEM), and neurological symptoms. Dr. Muirhead highlights the importance of recognizing the individual nature of the…
Purpose To provide expert advice on the role of physiotherapy in managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) and strategies to improve patient outcomes. Key Points Role of Physiotherapy in ME/CFS Physiotherapy can help manage symptoms such as muscle weakness, joint stiffness, and reduced mobility. Tailored exercise programs and gentle movements are recommended, with a focus…
Purpose To provide expert advice on eye-related concerns for individuals with Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), offering guidance tailored to their needs. Key Points Common Issues in ME/CFS Dry eyes, blurred vision, and sensitivity to light are frequent symptoms. Eye strain can worsen during periods of cognitive exertion or fatigue. Management Strategies Artificial tears and…
Purpose To provide expert insights from Professor Vinod Patel on endocrinology and its potential role in managing Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS). Key Points Role of Endocrinology Endocrinologists specialize in managing hormone-related conditions, such as Addison’s Disease and thyroid disorders. ME/CFS has no defined endocrine-based healthcare approach but may benefit from ruling out endocrine conditions…
Purpose To address common gastroenterology concerns for individuals with severe ME and related conditions, offering expert guidance from Dr. Edmond Sung and Dr. Speight. Key Points Managing Crohn’s Disease During flare-ups, a low-residue or liquidized diet is recommended until symptoms stabilize. Changes in bowel habits after diagnosis can be typical, even with adequate treatment. Tube…
Purpose To offer expert legal advice on key issues regarding wills, trusts, and powers of attorney, tailored to individuals with severe ME/CFS and their carers. Key Points Managing Financial Affairs Individuals with severe ME should consider granting a Lasting Power of Attorney (LPA) for Property and Finance, appointing both primary and replacement attorneys to ensure…
Patients sensitive to stimuli like light and noise should inform their surgeon, pre-operative clinic staff, anaesthetist, and anaesthetic nurse multiple times to ensure it is noted and accommodated. This information should be included in the morning operation list team brief to ensure the necessary modifications are made. Additionally, patients are encouraged to disclose all medications, vitamins, and supplements, including homeopathic remedies, to the anaesthetic team, as certain substances—like garlic, ginkgo, and St. John’s Wort—may increase surgical risks such as excessive bleeding or prolonged anaesthesia effects.