Carers Guidance & Resources

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Supporting People with Severe Myalgic Encephalomyelitis

Overview: Myalgic Encephalomyelitis (ME): Also known as Chronic Fatigue Syndrome (CFS), it is a serious, often misunderstood, neurological condition. Symptoms range from mild to severe disability, with 25% of cases classified as severe. Key Insights: Impact on Patients: Severe ME patients are often housebound or bedridden for extended periods. Quality of life for these individuals…

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Knowledge in the Hope of Protecting M.E. Sufferers from Unnecessary Sectioning

Here is a concise summary of the document: Background: The document aims to prevent unnecessary sectioning of individuals with Myalgic Encephalomyelitis (M.E.), emphasizing that M.E. is a neurological, biomedical illness, not a mental health condition. Preventive Measures: Maintain good relations with your GP and ensure they understand M.E. as a biomedical illness. Educate key figures…

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Caring for People with Severe Myalgic Encephalomyelitis: an open heart, open mind approach

Caring for People with Severe Myalgic Encephalomyelitis: an open heart, open mind approach: About Myalgic Encephalomyelitis (ME): ME is a multi-system dysfunction classified by the WHO. In severe cases, individuals are largely incapacitated, often housebound or bedbound. 25% of those with ME face extreme isolation and lack adequate care or medical support. Key Principles of…