Campaigning
Severe M.E Day – 8th of August 2017
A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.
A day to honor
A day to honor the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.
This Years Focus
A wise man once said, ‘Your illness does not define you. Your strength and courage does.’
To mark A Day for Understanding & Remem-brance on August 8th Amanda Hendrie’s sister
Katie and some of the staff who provide Amanda’s round the clock waking care will be aiming to keep silent for 24 hrs.
As well as raising funds, the Silence Challenge also promotes awareness of Severe ME and aims to help to spread the word about just how bad it can be.
Sadly, Amanda has lost the ability to speak.