Campaigning
Severe M.E Day – 8th of August 2024
A day to remember everyone who is suffering or who has ever suffered from Severe and Very Severe Myalgic Encephalomyelitis.
A day to honor
A day to honor the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.
This Years Focus
Hospital Care for people with severe and very severe ME
This article, also printed in the Summer Newsletter 2024, provides useful resources, including the relevant NICE Guidance, for people with severe ME who are/may be going to hospital. It also contains the live links from the article in the Summer Newsletter 2024
Severe ME Awareness Day Nutrition
This article was published in the Summer Newsletter 2023. It contains information about nutrition relevant to people with severe ME
Severe ME Awareness Day 2023 Nutrition Guidelines
This was published in the Summer Newsletter 2023 and contains the relevant Guidance from NICE around nutrition and tube feeding, including NICE Clinical Guideline 32, as well as other resources.