Campaigning
M.E awareness for 2021
Awareness helps in several ways: it educates the public and healthcare providers, reducing stigma and promoting early diagnosis; it drives funding for research into causes and treatments, as there’s currently no cure; and it fosters empathy and support for those living with ME, who often feel isolated due to the condition’s impact on their daily lives. By shining a light on ME, we can improve quality of life for millions and push for better medical and social resources.
raising awareness for 2021
Raising awareness for Myalgic Encephalomyelitis (ME), also called Chronic Fatigue Syndrome (CFS), is vital because it’s a misunderstood and often invisible illness. ME is a severe, chronic condition that impacts multiple body systems, leading to extreme fatigue, pain, brain fog, and post-exertional malaise—where even small activities worsen symptoms.
This Years Focus
RESEARCH IDEAS
A major project is looking for your input. They want to know what research you think should be funded in the future, and the deadline for adding your ideas is fast approaching. Your responses must be in by Monday 5th July 2021
Complaint to NICE
Guideline in Development NG10091 ME/CFS: failure to take pertinent evidence
into account
Life-Threatening Malnutrition in Very Severe ME/CFS
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Requesting further analysis of draft guidelines
Letter to NICE
Consultation on a Patient Safety Commissioner Role for Scotland
Consultation on a Patient Safety Commissioner Role for Scotland
HEALTH Learn about M.E. – free CPD training for health professionals in the UK
GENERAL New support for professionals on managing ME-CFS and Long Covid
GPs, medical students and allied health professionals in the UK can now access free online training on the diagnosis and management of ME-CFS.
At present diagnosis remains very slow and management and treatment can be
disjointed and ineffectual. Online professional education can make a big difference in effective practice and so ease the burden of illness.
This news item highlights funding to support dissemination of the module in the UK. However the module can be undertaken by doctors anywhere in the UK, indeed anywhere in the world.
Template letter that can be used to send to health professionals, in order to encourage them to take up the training
Display poster of the CPD module
Podcast explaining module
ME in Westminster (ME and Covid-19 vaccination)
Questions to MPs