ME Awareness 2019

25% ME GROUP response to NICE call for research evidence into ME Research


You should send the letter to:

House of Commons, Westminster, London SW1A 0AA. Of course, the same issues can also be raised with Members of the Scottish Parliament, Welsh Assembly Members, and Members of the Legislative Assembly in Northern Ireland.

Don’t forget to include your address – your MP needs to know that you are a constituent, and without an address won’t be able to write back! Also remember to sign and date the letter before sending.

Thank you!

MPNICE ltr 2019 formal

Letter to NICE concerning the removal of GET and CBT from Guidelines

To NICE re guidelines on treatment

Health Secretary pledges more support for people with ME

Scotland’s health secretary Jeane Freeman has told ME sufferers their experiences matter to her.

Appropriate ME Treatment

ME debate in Parliament
Appropriate ME Treatment


Dear All,

The Backbench Business Committee has granted a debate on ME. It will take place on the afternoon of Thursday 24th January.

It would be helpful if you could encourage the community to approach their MPs to request their support. Any briefings would also be appreciated.

The motion to be debated next week is as follows: “That this House calls on the Government to provide increased funding for biomedical research into the diagnosis and treatment of ME, supports the suspension of Graded Exercise Therapy and Cognitive Behaviour Therapy as means of treatment, supports updated training of GPs and medical professionals to ensure they are equipped with clear guidance on diagnosis of ME and appropriate management advice to reflect international consensus on best practice, and is concerned about the current trends of subjecting ME families to unjustified child protection procedures.”

Office of Carol Monaghan MP
Member of Parliament for Glasgow North West