Book Review: More Notes for Carers by Greg Crowhurst
I was in my late 30’s when my wife was diagnosed as having Severe ME. In a couple of days time I will silently celebrate my 65th birthday. How the disease devours you, decades at a time. Down these many years, I have learned a great deal about how to care for someone in unimaginable pain, who is experiencing suffering that never ceases and hypersensitivities so extreme, that even just my presence in the same room can be unbearable to her.
I have fought, I have struggled, I have shared my learning. I have worked closely with the 25% Group. I have built Stonebird, I have spoken up at Parliament, I have advocated, I have published three, well-received books on how to care and many, many articles.
For my work, in 2015, I was awarded a third-place BJN Nurse of the Year Award, which is unheard of for an unpaid carer.
So here, just before my birthday, I am proud to announce that my fourth and final book on how to care for people diagnosed with Severe/Very Severe ME, ‘More Notes for Carers’ is ready. Given the overwhelming constraints of caring full time for someone with profound levels of disability, the long process of completing this book has been immensely challenging.
Because of the Pandemic it is initially going to be published in ebook form.
I very much wanted to follow up my previous book, “Notes For Carers”, with what I hope is a comprehensive Care Guide, especially for those who are new to caring. It brings together all our learning through the years.
As in all the other books, my intention, above all, is to encourage others.
My hope is to show how, in this silent, fragile and complex situation, you can not only flow and be present with each other, but learn also how to grow, to communicate, to be aware, to be skilled, to be empowered through partnership, to make all the difference in the world to the quality of care and understanding people receive.
And maybe, like me, in moments of connection, you too can touch something indefinable and infinitely precious, something akin to pure joy perhaps, or even love.
For more information and to purchase, please see this webpage:
