Report on the Meeting of the APPG on ME, July 12, 2007

Purpose To provide a detailed account of the discussions, decisions, and presentations from the All-Party Parliamentary Group (APPG) meeting on Myalgic Encephalomyelitis (ME).

Key Points

1. Re-Election of Officers
   • Dr. Des Turner MP was re-elected as Chair, supported by other existing officers.
2. Presentation on NHS Services
   • Dr. Terry Mitchell, clinical champion for ME/CFS in East Anglia, discussed the development, funding, and challenges of ME/CFS services in the region.
   • A biomedical model was emphasized, alongside patient feedback on service quality.
3. Funding Issues
   • Nationally, funding reductions impacted services significantly, leading to organizational challenges and longer patient waiting times.
4. Discussion and Debate
   • Patient representatives raised concerns about funding cuts, psychosocial management approaches, and the impact of new NHS guidelines.
   • Praise and criticism of regional services were shared during a lively debate.
5. Future Actions
   • Plans to invite the Secretary of State for Health to address funding and research issues at the next meeting.
   • Suggestions for a parliamentary adjournment debate to highlight ME/CFS-related challenges.

Target Audience Government officials, healthcare professionals, patient advocacy groups, carers, and individuals affected by ME/CFS.

Overall Outcome The meeting underscored the urgent need for sustained funding, improved service delivery, and political intervention to support ME/CFS patients. Collaborative efforts and continued advocacy were highlighted as crucial for meaningful progress.