ME in Scotland: 2012 Update on Cross Party Group Activities

Summary: This document provides an overview of the Cross Party Group (CPG) on Myalgic Encephalomyelitis (ME) in Scotland during 2012, highlighting key meetings, events, and initiatives. Key points include:

• CPG Meetings:
  • January 19, 2012: Focused on establishing six working groups addressing areas such as healthcare needs, GP education, and welfare reform. Feedback from the 25% ME Group was shared to represent severely affected patients.
  • March 21, 2012: Introduced a new structure where working group feedback was pre-circulated. Discussions centered on social services and care issues, with reports on NHS experiences, illness severity, and disability benefits.
  • June 6, 2012: Featured a presentation on the “Glow” Virtual Learning Environment (VLE) for children unable to attend school, showcasing its potential for young ME patients.
• ME Awareness Week Reception (May 8, 2012):
  • Held in the Scottish Parliament’s Garden Lobby, this event aimed to raise MSP awareness of ME.
  • Speakers included individuals with ME, a GP advocating for better education, and family members sharing personal experiences.
  • Seventeen MSPs attended, with additional messages of support from others.
• Key Initiatives:
  • The “Glow” VLE project by Perth & Kinross Council was highlighted as a promising tool for supporting the education of children with ME.
  • Plans for future meetings included inviting the Health Secretary and Welfare Reform Committee to discuss care in Scotland.

The document underscores the CPG’s efforts to improve healthcare, education, and awareness for ME patients in Scotland.