MSPs and ME Matters: A Guide to Parliamentary Engagement (July 2010)

Summary: This document, prepared by Helen Brownlie on behalf of the 25% ME Group, serves as a guide for lobbying Members of the Scottish Parliament (MSPs) on issues related to Myalgic Encephalomyelitis (ME). Key highlights include:

• Purpose: The guide lists MSPs who have shown interest or involvement in ME-related matters, including participation in parliamentary events, submission of questions, and holding relevant government or shadow positions.
• Parliamentary Landmarks:
  • 1999 Onwards: Establishment of the Cross Party Group (CPG) on ME.
  • 2001: Petition on ME lodged with the Petitions Committee, later referred to the Health Committee and closed in 2005.
  • 2002 & 2005: Debates on motions seeking research funding and highlighting the need for improved services and recognition of ME.
• Petition Goals:
  • Conduct a Strategic Needs Review Assessment for ME/CFS in Scotland.
  • Establish the size and needs of the ME/CFS population, including those severely affected.
  • Create a center of excellence for treatment and research.
  • Improve GP training and awareness of ME/CFS.
• Parliamentary Questions: The document details questions posed by MSPs on ME-related issues, such as service provision, research funding, and patient support.
• Advocacy Tips: It provides practical advice on contacting MSPs, including email and postal addresses, and emphasizes the importance of sustained lobbying efforts.

The guide underscores the need for continued advocacy to improve healthcare services, research, and societal understanding of ME.