Paying for Care when Suffering from Severe M.E. (ENGLAND)

Key Points:

Needs Assessment:

  • First Step: Request a needs assessment from your local authority, applicable for both individuals and carers.
  • The assessment determines eligibility for services and creates a care and support plan detailing:
    • Outcomes to achieve.
    • Assessed needs and how they’ll be met.
    • A personal budget figure, including any agreed direct payments.

Personal Budget:

  • Definition: The cost to the local authority of meeting your assessed eligible needs.
  • Includes a financial assessment to determine your contribution.
  • Can be accessed as:
    1. A direct payment (money given to you).
    2. A local authority-managed budget.
    3. An individual service fund (managed by a third party).
    4. A mix of these options.

Self-Funders:

  • Those with over £28,750 in capital may need to self-fund but can request services from the local authority, which may charge an arrangement fee.

Direct Payments:

  • Empower individuals to use funds in ways that best meet their assessed needs.
  • Options include hiring carers or using home-care agencies.
  • Support groups and advice may be available to help manage direct payments.
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