Severe ME Understanding & Remembrance Day : This day aims to bring public attention to the illness for the sake of all those presently suffering from Severe Myalgic Encephalomyelitis and to remember all those who have died from ME.
A day to honour the strength of spirit of all those who have endured and continue to endure decades of suffering and profound physical dysfunction and yet receive little, or no recognition or help, but rather continue to experience gross misrepresentation and misinterpretation of their illness and profound disability.
This year we want to highlight the “ME Cover Up”.
We want to feature this “Cover Up” within our Severe ME Day section of the website, and have asked members, if possible, to send in photos of themselves covered by a sheet and holding up an awareness slogan.
Through this, we want to show that many sufferers feel they are invisible to the outside world and feel that ME is not taken seriously.
We also want to make the point that sufferers really want and need so desperately to be “seen, heard and recognised” and to show that we refuse to be ignored or to be invisible to the world. We may not be able to present ourselves to the world because of severe ill health but we want to be listened to and heard by the appropriate authorities and to receive services, and appropriate help. We would also like to see more biomedical research undertaken, and cognisance taken of the body of biomedical research that exists at present.
We want the medical profession and general public to understand the seriousness of the illness and remember that underneath the sheet there is still a human being.
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