April 2020

Press Releases PETI Today An estimate of 2 million Europeans affected by the disease EU research remains fragmented and lacks coordination ME/CFS is still poorly understood and consequently, underdiagnosed https://www.europarl.europa.eu/news/en/press-room/20200425IPR77906/underfunding-of-biomedical-research-into-myalgic-encephalomyelitisis-unjustified

Why is this important? The Government has chosen to ‘focus on new claimants’ by providing an extra £20 a week for people claiming Universal Credit. By doing this, they are discriminating against millions of disabled people on other out of work disability benefits. https://you.38degrees.org.uk/petitions/stop-leaving-disabled-people-behind?bucket&source=facebook-share-button&time=1587996856&utm_campaign&utm_source=facebook&share=8d39b44c-2153-4b83-a42c-7c2948eac0e9&fbclid=IwAR0QbP6PwyQSYPjLaAzw3YqpaRMBW5-VF_3Uou_PTn3nCSpykuwDqCVLGI8

Opposition to Oxford Health NHS Foundation Trust: “Coping with Coronavirus: Fatigue ”We, the undersigned, request immediate withdrawal of the Oxford Health NHS Foundation Trust leaflet “Coping with Coronavirus: Fatigue” for the following reasons….. https://25megroup.org/wp-content/uploads/2020/04/Opposition-to-Oxford-Fatigue-Leaflet.pdf

Conditions like chronic fatigue syndrome have been linked to viral infections, so it’s possible that the covid-19 virus may go on to trigger similar conditions https://www.newscientist.com/article/mg24632783-400-could-the-coronavirus-trigger-post-viral-fatigue-syndromes/#ixzz6Ji0drMeu

Use information for different areas with links to cover areas such as: Updated 9.4.2020 Suggestions of where to get help 1. Food delivery businesses 2. General 3. Advice for employers 4. Advice regarding ME 5. General Disability news 6. Worldwide updates https://onedrive.live.com/view.aspx?resid=CB2C4502C6DE2B56!341&ithint=file%2cdocx&authkey=!AKK8NkCa3_8vdk0

Special Issue Information Dear Colleagues, “ME/CFS—The Severely and Very Severely Affected” is a proposed themed Special Issue of Healthcare concerning housebound and bedbound Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) patients. Our intent is to redefine ME/CFS as the serious disease that it is. Up to this point in time, all literature Read more…

Very important. Please sign to protect the lives of disabled people. Let others see this post Click below where it says “view post” to see the full post and to access the link to read and sign the letter “…………… However, we have read about cases that have made us Read more…

Will COVID-19 Leave An Explosion of ME/CFS Cases in its Wake? The COVID-19 pandemic is squeezing our medical systems, whacking our economy, testing our leadership and our resources but at the bottom of it COVID-19 is one thing – it’s severe infection – and we know the role severe infections Read more…