LETTER TO SEND TO SHOPS TO HIGHLIGHT ISSUE OF SHOPPING PROBLEMS I have an illness known as M.E. (Myalgic Encephalomyelitis): this is described by the W.H.O. (World Health Organisation) as a neurological disease, making it similar to illnesses such as Multiple Sclerosis, Motor Neuron Disease and Parkinson’s. The NHS is Read more…
Useful medical information when treating COVID-19 in patients with underlyingmyalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) and severe fibromyalgia (FM) If your patient has been diagnosed with ME/CFS/severe FM,you should assume they have a serious, chronic, multisystem illness that may negatively impact their prognosis. The intention of this letter is to provide Read more…
Coronavirus: Government ‘has abandoned’ disabled people on direct payments The government is facing accusations that its emergency planning for dealing with the coronavirus pandemic has “abandoned” disabled people who use direct payments to employ their own personal assistants (PAs). Although the government finally produced guidance for the social care sector Read more…
To ask the Secretary of State for Health and Social Care, if he will take steps to expand NHS specialist chronic fatigue syndrome services in (a) Sussex (b) Kent and (c) other areas across the UK; and if he will make a statement. https://www.theyworkforyou.com/wrans/?id=2020-03-10.27580.h
This year marks the 25 year anniversary of the 25% ME Group, the only charity concerned specifically with the needs of the severely affected. https://25megroup.org/wp-content/uploads/2020/03/international-ME-newsletter.pdf