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Welcome to The 25% M.E. Group Website
Support Group for Severe M.E. Sufferers

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25% ME Group Guidance Sheets - available from advocacy service or office

ESA 1. Claiming ESA with Severe M.E. – Key Points                         
This provides some basic pointers about how ESA is judged and advice on the sort of things you should be taking into account when completing an ESA50 form.

ESA 2A. ESA50 Form Part 1 – Physical Function Guidance                             
Detailed guidance on completing part 1 of the ESA50 form.
As revised, following changes to the layout of the form January 2013.

ESA 2B. ESA50 Form Part 2 – Mental, Cognitive & intellectual Function Guidance
Detailed guidance on completing part 2 of the ESA50 form.
Not yet revised following changes to the layout of the form January 2013, however no major points affecting people with severe M.E.

ESA 3. Basic Information on ESA                                                                               
This gives the basics on how ESA is judged, and points that anyone supplying supporting evidence should be aware of.

ESA 4. Face to Face Assessment Guidance                                                          
Guidance on preparing for and having a face to face assessment.

Reconsideration and Appeal                     
Please contact the advocacy service directly for advice on this topic

Items are available to MEMBERS only, and at a cost of £1 PER ITEM (including postage)
Also can be sent as an email attachment, free of charge - please contact:  LINK


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(which is replacing DLA)

 Replacement of Disability Living Allowance with Personal Independence Payment

Plans to replace DLA with PIP

Response to Consultation re DLA replacement (PIP)

PIP Toolkit (DWP) - Accessing List of docs


Personal Independence Payment (PIP)

25% ME Group Guidance Sheets

PIP1 - Guidance  on starting your PIP claim
The DWP will write to you when the time comes to transfer from DLA to PIP.
This guidance sheet covers the first stage of the process, getting your PIP claim up and running
<link> to document ( title: ‘PIP1 Guidance’)

We also have the following guidance on how PIP awards are judged, and completing a PIP2 form (about how your illness affects you):

PIP2 form completion guidance Part 1
Explains how decisions about PIP are made, and provides general guidance on providing information about your difficulties with Daily Living and Mobility.

PIP2 form completion guidance Part 2  
With specific guidance on each aspect of Daily Living and Mobility involved in PIP.

PIP2 form completion guidance Part 3

This looks at completing other parts of the PIP2 form, such as giving information about your illness [Q2], and the professionals involved [Q1], and supplying additional information [Q15].
it also covers supplying supporting evidence.

This guidance is available to MEMBERS only, at a cost of £1 PER ITEM (including postage)
Items can also be sent to members as an email attachment (free of charge) - please contact: LINK 
Reconsideration and Appeal                     
Please contact the advocacy service directly for advice on this topic

We also recommend the Disability Rights UK Guide to PIP
This is free to download at: https://crm.disabilityrightsuk.org/pip-guide
The guide can also be provided by post from DRUK, at a cost of £4
020 7250 8191 - Monday to Friday 10.00-13.30 and 14.30 to 16.00
Disability Rights UK, Ground Floor, CAN Mezzanine, 49-51 East Rd, London N1 6AH


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Disablity Premium Benefit Info

Carers Allowance

How to find Advocacy help

Local housing allowance

What Happens if I'm too Ill to Attend a Tribunal in Person

Disability Related Expenditure Assessment Guidance (I34).pdf

When you are assessed as needing care at home social services will also assess you financially as to your ability to pay a contribution towards the cost of your care.  These financial assessments should take into account your Disability Related Expenditure: “any reasonable additional cost that the service user incurs due to a disability or condition”. This information sheet provides guidance about this.

Patient Transport Info Sheet.pdf

“Information about non-emergency patient transport services and help with transport costs, with helpful tips for ’travelling well’. Covers travel as a stretcher patient.”

Exercise Ensuring Patient Safety.pdf

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Home Care Resourses List 2016

1. Home Care Briefing (Vers I - Home Care Worker).pdf

1. Home Care Briefing (Vers II - Home Care Delivery).pdf

2. Pro Forma letter for sending Home Care Delivery Briefing

3a. Home Care Worker Key Messages (April 2016).pdf

3b. Key Messages for Home Care Workers - bullet points.rtf

4. Care - How Do I Help Someone with Severe M.E._.pdf

5. Home Care - Getting it Right (Qly I 39) copy.pdf

6. Home Care & 're-ablement' - 'just plain cruel'.pdf

7. a. Social Services Report - Accessing & Receiving Home Care

(Please email office for 7a document if required)

7. b. 25% ME Group social services analysis - summary

7. c. Social Services Survey - The CCA

7. d. Occupational Therapy Analysis Report

7. e. Family Carers Survey Analysis Report

8. Feedback (Scotland) MEETING CARE NEEDS


9. Clinical Guideline on support & care, extracts, severely affected

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Information relating to Social Services and Care

Care Worker Briefiing

25% ME Group Adult Social Services Survey Feedback

Home Care Briefing paper

Home Care - Getting it Right

Key Messages for Home Care Workers Brief version


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Getting the best out of your doctor

Differentiation from depression & somatisation.rtf

Autonomic dysfunction.rtf

Is exercise safe_.rtf

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When a relative is terminally ill

When a loved one dies

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ESA and PIP surveys

ESA Survey Questionnaire

Member - ESA Feedback 2012

Key Issues on ESA -2013

QUESTIONNAIRE: claiming Personal Independence Payment (PIP)


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