Other Good M.E. Site
The following web sites may be of interest to people with severe M.E.
To report a broken link, or to suggest a site to include on this page, please click email at foot of the page
Sophia and me
Website dedicated to information relating to the treatment of Sophia, who sadly died from kidney failure and ME
Blue Ribbon Awareness for M.E. (BRAME)
Internationally recognised organisation, which aims to increase awareness of ME and the severe debility it can cause. Set up by a severe sufferer and her mother.
Borg of Space
Site written by person with M.E. and fibromyalgia, describing life with these conditions, including a list of tips and links. Click on the flag when you visit the site for English translation.
ME Action UK
For support, noflame discussion, news and research
National Support Group. Good website, which includes medical information and details of the Association's group for Young People and children.
Excellent site with a message board which is aimed at parents and parents to be who suffer from ME / CFS
UK based group offering support with thyroid related issues. Helps a lot of people with ME who have low/normal thyroid levels and who, once on treatment, often feel much better. Also to start a study into low DHEA and cortisol levels in M.E.
The Severe ME Carer's Support Site
Speaking up against the discrimination and prejudice that surrounds this illness. Vastly strengthening the Carers voice
Satori - 5
Gordon D McHendry's site covering ME/CFS, MCS/TILT, HRS and Alternative Health in Scotland, the UK, and worldwide
The MEChat eXtra website has a number of items specially dedicated to the severely affected
Research into Myalgic Encephalomyelitis
Group dedicated to campaigning for research into ME
A Hummingbirds Guide to Myalgic Encephalomyelitis:
A great ME site run by Jodi in Australia
The Grace Charity for M.E
A Kent based charity, founded on Christian prayer.
It has produced a document to support sufferers who wish to refuse psychological therapies.
There is also a survey to fill in regarding helpful treatments and doctors.
REGIONAL SUPPORT GROUPS
MYALGIC ENCEPHALOMYELITIS/CHRONIC FATIGUE SYNDROME:
Helpful Hints for Daily Living And Information on Services and Resources
This website contains a collection of practical hints for those suffering from Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), including information on services and resources, with contact details to support and assist sufferers, their carers, families, friends, and health care practitioners.
Warwickshire Network for ME
Contact: Duncan or Lesley Cox,
We’re an independent informal group based in Rugby but network throughout Warwickshire. Cater for the severely affected via quarterly newsletter and group contact list. Actively campaigning for bio-research and Friends MERCK Support group for people with ME, CFS, PVFS and FMS (and their carers) in the Milton Keynes area. Quarterly newsletter and meetings once a monthly.
M.E Support in the Staffordshire area.
North East of England M.E. support group
Welsh association of M.E. Support Mid & West Wales ME Group
Grwp ME Canolbarth a Gorllewin Cymru
Mid and West Wales ME Group / Grwp ME Canolbarth a Gorllewin Cymru
North London ME Network
Providing support for ME sufferers and their carers in North London
Eastleigh and Winchester ME support Group
OVERTON STUDIOS TRUST
Overton Studios Trust,
COLWYN BAY LL28 5AD
Please include an S.A.E. if you want a reply E-mail: email@example.com
Web Site: www.ostrust.co.uk
Overton Studios Trust offers worldwide holistic healing and media production for people with: Myalgic Encephalomyelitis (ME), Chronic Fatigue Syndrome (CFS), Post Viral Syndrome (PVS), Chronic Fatigue and Immune Deficiency Syndrome (CFIDS), Fibromyalgia (FM).
OTHER INTERESTING LINKS
25% ME GROUP ON FACEBOOK
Just letting you know that we've set up a 25% M.E. Group section on facebook. http://www.facebook.com/ Facebook is an easy, and fun way to keep in contact with old friends, and meet some new ones!
It only takes a minute to join facebook, then you can start adding or searching for your facebook friends. You can also add video, photos, music clips or your own artwork to your page.
Once you have registered, the facebook address of the 25% M.E. group is: http://www.facebook.com/group.php?gid=10567852750
Hope you can join us!
Disability benefits information - Disability Living Allowance, Carer's Allowance and Attendance Allowance - has been moved from the public-facing DWP website (www.dwp.gov.uk). This happened on Wednesday 8 March 2006.
The information is currently in the 'disabled people' and 'caring for someone' sections of Directgov. This will mean that from Wednesday information about these benefits (rates, how to claim etc) are hosted solely on Directgov. The existing DWP site will link through to Directgov and inform people that they are choosing an external link.
I want to advise you that this information has been taken down and moved to the disabled people area of Directgov at www.direct.gov.uk/disability.
Tiffany St James
Directgov - Disabled People and Carers
Department for Work and Pensions
2nd Floor, The Adelphi
1-11 John Adam Street
London. WC2N 6HT
020 7712 2728
Directgov - information for disabled people and carers
Directgov provides a single point of online access to government services and information - including employment, financial support, rights, education, independent living and much more.
Useful Lyme Desease website
USA (702) 810 6393
I am a long term severely affected ME/Autoimmune survivor who came to USA to seek an answer, whilst I still fight daily for medical support, I still desire to create and support others, I chose to set up an on line website trusting the Lord would give me strength. My site contains Natural beauty products, therapeutic Bath salts,
Natural soaps, with understanding of the severity of "sensitivity" one faces when challenged with CFS/MCS.
I grow and sell Organic Medical herb seeds for restoration of ones Immune system.I use nutritious Herbs and flowers to support my afflictions & for the health recipes I create.
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